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2 / 3 · YOUR FAMILY PAGE
MAKE YOUR FAMILY PAGE
Let’s make your family page.
A few details will give your family a little identity here. You can always add more later.
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Who are you here for?
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What should we call your family here?
You can use a first name, nickname, family name, or anything you’re comfortable sharing.
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Where are you?
We will never ask for your street address.
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Who in your family has PKAN?
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When were they born?
Month + year is enough. We don’t need an exact birthday.
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When were they diagnosed with PKAN?
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Would you like to add a picture?
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YOU’RE HERE
Your little place is ready.
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Your family
somewhere in the world
joined todayTELL US A LITTLE MORE
When did you first notice that something might be different?
who can see this?
Your answer may help another family recognize an experience similar to theirs.
TELL US A LITTLE MORE
What were the first symptoms you noticed?
ONE LAST QUESTION
What does your person love right now?
← edit answers
What do they love right now?
When did you first notice something might be different?
First symptoms we noticed
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OUR FAMILY
Your family
LITTLE THINGS
OUR EXPERIENCE
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