Research update translations
Would anyone want to help make short plain-language summaries of important research updates in Korean, Spanish, Italian, and other languages?
✦ spark 24 I can help 11 replies
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Notes from our clinic visit
We learned a few things today that might be useful to other newly diagnosed families. I’m putting our notes together here in case they help someone.
✦ spark 18 7 replies
Has anyone traveled a long distance for a specialist?
We’re trying to figure out what to expect and what was actually worth bringing or arranging ahead of time.
✦ spark 9 14 replies
She took six steps today!
Just wanted to share a little good news with people who understand how enormous the little things can feel. ❤️
✦ spark 41 19 replies
A hello from Madrid
We found this portal recently and wanted to introduce ourselves. It means a lot to see other families here.
✦ spark 16 8 replies